home bbs files messages ]

Just a sample of the Echomail archive

Cooperative anarchy at its finest, still active today. Darkrealms is the Zone 1 Hub.

   SURVIVOR      Cancer/Leukemia/blood & immuune system/c      538 messages   

[   << oldest   |   < older   |   list   |   newer >   |   newest >>   ]

   Message 501 of 538   
   Daryl Stout to Ardith Hinton   
   Re: Health Update   
   09 Jul 20 06:51:00   
   
   TZUTC: -0500   
   MSGID: 31.fidonet-survivor@1:19/33 236c3e92   
   REPLY: 1:153/716.0 f0526e46   
   PID: Synchronet 3.18a-Win32  Jun 26 2020 MSC    
   TID: SBBSecho 3.11-Win32 r3.173 Jun 26 2020 MSC 1925   
   CHRS: ASCII 1   
   Ardith,   
      
    AH>            Ah.  So I'm not losing my mind... or at least not   
    AH> completely.  :-Q   
      
     Of all the things I've lost, I miss my mind the most.    
      
      
    AH>            1988 in Dallas's case, 1990 in mine.  We started this echo   
    AH> in 1990 while our daughter was in treatment for leukemia & I noticed   
    AH> many people were returning home from the hospital to small communities   
    AH> where they had a lot of well-wishers who crowded the local airport to   
    AH> welcome them back, but where it might be difficult to find anybody with   
    AH> related knowledge or experience.  Our focus changes as various people   
    AH> bring up various issues.  IMHO SURVIVOR is an attitude inspired by the   
    AH> work of an oncologist, not a medical diagnosis.  :-)   
      
     One has to be proactive. There is a campaign right now from Arkansas   
   Urology...noting while women tend to take care of their personal health   
   issues (breast self exam, etc. -- but men do get breast cancer), men   
   tend to be "brutes", thinking they're invincible, and not getting things   
   like their prostate or testosterone levels checked). Admittedly, the   
   prostate check is not the most pleasant feeling, but it's a walk in the   
   park, compared to the COVID-19 nasal swabs!! :P   
      
    AH>            IOW, about 1/4 of the amount.  I imagine that may be what a   
    AH> friend was using when she told me she'd spent three days on the toilet   
    AH> & said "Never again!"  She had a second colonoscopy a few months ago,   
    AH> however, and reported that the newer prep was a considerable   
    AH> improvement....  :-)   
      
     I'm going back to the clear citrate of magnesia and Ducolax next time.   
   My late wife termed it "Sprite With A Kick".  While tart, and best   
   served chilled, it was much better than that MY-LYTELY. The Go-Lytely   
   was like tepid salt water .   
      
    AH>            In my case the instructions from the hospital were rather   
    AH> sketchy, but Uncle Google provided further details.  ;-)   
      
     I saw a picture, where this guy has a T-shirt on. It noted "I don't   
   need Google. My wife knows everything".    
      
    AH>            I found it very helpful when... roughly 3/4 of the way   
    AH> through the prep... I began shaking uncontrollably.  My self-diagnosis   
    AH> of low blood sugar was confirmed within minutes after Dallas brought me   
    AH> some apple juice.   
      
     Thankfully, I'm not yet diabetic...but am Pre-Type 2. The Hemoglobin A1C   
   has been holding steady at 6.1, but the threshold is 6.4 for a type 2   
   diagnosis. I get full blood work every 6 months, with them done in both   
   September and March.   
      
    AH>            Another thing which both Dallas & I found helpful, although   
    AH> he was using a split dose & I wasn't, was decanting the prep into empty   
    AH> soda bottles ... appropriately labelled, of course.  That way it's   
    AH> easier to fit the stuff into the fridge & to keep the next installment   
    AH> cold....  :-)   
      
     As noted, the stomach acid I had, reacted with the citric acid from the   
   prep, and it felt like my esophagus and throat were burning...where I   
   couldn't finish the prep.   
      
    AH> Although I love halibut the season is limited, and although the fries   
    AH> could easily have been replaced by a salad I had a yen for them.  The   
    AH> fat content was risky... but I'm alive to tell the tale.  :-))   
      
     After fasting for bloodwork, I tend to go order a double or triple   
   cheeseburger...I figure I've earned it.  Lately though, I'm on a   
   diet of lunch meat sandwiches and diet green tea. Finances are tighter   
   than a frog's butt underwater right now.   
      
    AH> If you believe life is still worth living despite your medical problems   
    AH> I reckon we're on the same page....  :-)   
      
     Same here.   
      
     Because of COVID-19, the testapel (testosterone implant pellets) are   
   back ordered for another 6 weeks. My urologist noted that my level (390)   
   is at the low end of the medium range...and he felt that if we waited   
   until August, the levels would crash, and I'd likely be in trouble with   
   cardiovascular and diabetes issues. So, I am getting weekly shots in   
   the hip/gleute/butt cheek, every Wednesday...then, on the first Wednesday,   
   I also get a B-12 shot in the same area.    
      
     My shoulders are so sore from arthritis, that if I get a shot in there,    
   it's hard to sleep, or work at the computer, for all the pain. I joke    
   that "I get cheeky with the nurses" ...but nudity means nothing to    
   them...as they've seen it all before. While there's a time and a place    
   for everything, when it comes to medical stuff, folks need to throw    
   all modesty out the window. Yet, I know folks who won't go to the doctor   
   for the fact they don't want to be seen naked, or discuss about "The 3   
   P's -- peeing, pooping, and procreation".   
      
   Daryl   
      
   ... Darn it!! I forgot all about the Amnesia Conference!!   
   === MultiMail/Win v0.52   
   --- SBBSecho 3.11-Win32   
    * Origin: The Thunderbolt BBS - tbolt.synchro.net (1:19/33)   
   SEEN-BY: 1/123 15/0 2 19/25 33 36 90/1 104/115 106/201 633 987 114/224   
   SEEN-BY: 114/702 705 706 709 116/18 120/340 601 123/131 140 124/5014   
   SEEN-BY: 124/5016 128/2 73 187 253 130/803 153/7715 218/700 222/2   
   SEEN-BY: 226/30 227/114 702 229/101 424 426 664 1014 230/150 152 240/5832   
   SEEN-BY: 249/206 307 317 250/1 261/38 100 266/512 267/155 275/100   
   SEEN-BY: 282/1031 1056 291/100 111 298/25 305/1 3 310/2 312/2 317/3   
   SEEN-BY: 320/119 219 322/757 340/400 341/66 342/200 387/2 21 27 396/45   
   SEEN-BY: 640/1321 712/848 801/161 189 2320/105 3005/1 3634/12 5020/715   
   SEEN-BY: 5020/1042   
   PATH: 19/33 396/45 261/38 15/0 317/3 229/426   
      

[   << oldest   |   < older   |   list   |   newer >   |   newest >>   ]


(c) 1994,  bbs@darkrealms.ca