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|    SURVIVOR    |    Cancer/Leukemia/blood & immuune system/c    |    538 messages    |
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|    Message 309 of 538    |
|    Ardith Hinton to Mark Hofmann    |
|    Childhood Leukemia... 1.    |
|    31 Jul 14 22:12:44    |
      Hi, Mark! Recently you wrote in a message to Ardith Hinton:              AH> That part hasn't changed, apparently. Her treatment lasted       AH> for 2 1/2 years... but I was also told it took 3 1/2 years       AH> for boys.              MH> Basically the same, but depending on certain test results,       MH> the treatment times in the Maintenance Phase can be less.                      Ah. I guess there's more flexibility now that the doctors have been       using +/- the same protocols for over twenty years. In our day the time frame       was quite rigid AFAIK, but since then they've fine-tuned a lot of things. :-)                             [re prednisone]       MH> He was on the steroid for the first 29 days in a row. In       MH> addition to all the things you noted, he also was eating       MH> like crazy.                      Our daughter didn't feel much like eating during the first few weeks       ... she survived chiefly on milk, juice, and formula. While I was in hospital       with her nothing went to waste, though. Fortunately she would leave enough on       her plate to enable me to keep body & soul together until Dallas arrived after       work. I understand prednisone does tend to cause food cravings, typically for       salty foods &/or carbohydrates. Maybe our daughter's cravings were different.       In any case I was surprised... and rather amused... when I found out that some       local pizza restaurants cheerfully made deliveries to the hospital. Teenagers       are more likely to be there on their own than younger children, of course, and       more likely to have independent means by which to pay for such luxuries. :-))                            MH> This then means going to the bathroom like crazy and he       MH> ended up with a rash that wouldn't heal until he was off       MH> the steroid.                      Uh... you mean something akin to diaper rash? We had a very similar       problem during the third week, in part because of the stool softener which was       routinely administered during treatment to keep things moving along. It was a       difficult time for us. But I gather the alternatives could be worse... you do       *not* want caustic chemicals eroding your child's innards, where you can't see       what's going on & where the damage would be a lot more difficult to fix.               Because prednisone inhibits the immune response, it is often used in       the treatment of arthritis & asthma as well as leukemia. The downside in such       situations as yours, however, is that it slows the healing of wounds.               What you gain on the swings you lose on the roundabouts, or so it is       said. Our daughter had a stubborn case of "cradle cap" which disappeared when       she lost her hair. Glad to know the rash has cleared up, at any rate.... :-)                                   --- timEd/386 1.10.y2k+        * Origin: Wits' End, Vancouver CANADA (1:153/716)    |
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