home bbs files messages ]

Just a sample of the Echomail archive

Cooperative anarchy at its finest, still active today. Darkrealms is the Zone 1 Hub.

   SURVIVOR      Cancer/Leukemia/blood & immuune system/c      538 messages   

[   << oldest   |   < older   |   list   |   newer >   |   newest >>   ]

   Message 224 of 538   
   Daryl Stout to Ardith Hinton   
   Re: Ailments... 1A.   
   05 Jan 13 15:40:30   
   
   Hi, Ardith...haven't typed at you since last year.    
      
    AH>  I understand colonoscopies are a drag... a female friend   
    AH>  had one recently & told me she was hors de combat for three   
    AH>  days.  The alternative could be worse, however, if further   
    AH>  developments took place unchecked....  :-Q   
      
     One time, they gave me this "Go-Lytely", which was nauseatingly tepid    
   salt water. When I gagged on it, they said "we can put it up through   
   your nose", I groaned "No, I'll drink it"...man, that stuff was nasty!!   
      
     Now, I take a bottle of clear citrate of magnesia (my late wife    
   termed it "Sprite with a kick")...which is rather tart, but tastes   
   better chilled...followed by 3 Ducolax tablets, then one additional   
   Ducolax just before bed. Then, an enema the next morning (a few hours   
   before the procedure), and it cleans the colon out rather nicely!! As   
   a side, I take the clear citrate of magnesia...because while apparently   
   the red version of said solution does the same thing, it would make it   
   appear that there was blood in the colon...which is obviously not good.   
      
     Plus, I drink clear flavored water ONLY the day before I take all the    
   purgatives, then continue the clear flavored water the day of the    
   purgatives (which is the day before the procedure). That helps clear    
   the colon out better. So, while the clear liquids are 2 days before   
   the procedure, the actual purgatives are just 1 day before. With that   
   "Go-Lytely" it was like 2-3 days before.    
      
     That cleansing also had to be done before an IVP (to check the entire    
   urinary tract for kidney stones or obstructions)...apparently, the colon    
   is in front of the ureters, etc., and any fecal obstruction would block    
   the view of the dye going through. I've had problems with an enlarged   
   prostate for years, but so far, the prostate specific antigen tests   
   have shown no cancer. But, I don't want to risk it getting so large   
   that it blocks the flow of urine out of the bladder. That is a MEDICAL   
   EMERGENCY known as AUR (acute urinary retention). I've been prepared for   
   a possible procedure where they remove the center of the prostate, so   
   the flow of urine out of the bladder isn't blocked. They also did a   
   cystocopy (what I call a front-end colonoscopy) on me in late November,   
   and it showed no blockage from the bladder, and the urethra, all the   
   way out the penis...which was good news. That sensation of passing a   
   4 millimeter kidney stone was not pleasant to say the least!! But, once   
   you have had one kidney stone, you are at risk for more.   
      
     They do have me on Furosemide (generic of Lasix)...a diuretic...which    
   helps take the fluid off my legs...mainly the lower calves. With drinking    
   large amounts of Grape Gatorade (recommended by the urologist to replenish   
   the electrolytes), and the diuretic, I can pass 3500 cubic centimeters of    
   urine in a day. I have to keep a diary on what fluids I take in, and how   
   much urine I'm excreting. They are trying to figure out why my urinary   
   tract is getting as ornery as my digestive tract.   
      
     Speaking of which, I used to have terrible abdominal cramps after the    
   colonoscopy, but a fellow ham radio operator (who is now a retired    
   gastrointerologist) told me to tell the doctor "to let the air out   
   of my rear end tire before removing the colonoscope". It did the trick...   
   no cramps, and aside from being groggy, I felt like a million bucks!!   
      
     They did find several benign polyps a few years ago, but none since   
   then, and it's better to be safe than sorry. Colon/colorectal cancer   
   is the second greatest killer behind breast cancer and heart disease.   
      
    AH@>           Uh-huh.  So it's not a disease affecting only overweight   
    AH@> middle-aged guys who love their meat & potatoes, contrary to popular   
    AH@> belief... [wry grin].   
      
     The dangerous thing is that in its early stages, there are no symptoms   
   whatsoever. I've heard way too many stories of folks who waited until   
   they felt lousy to go to the doctor...and in the case of cancer, by   
   then, it's too late. The BEST time to see your doctor is when you're   
   feeling great...seriously. :)   
      
     On a side note, when I took my dachshund into the vet several years   
   ago, I asked the vet why the dog did certain things, the vet replied   
   "he's a dog"...to which I said "well he don't look like no darn cat,    
   doc!!"...to which came the reply "Correct...that'll be $50 please".    
   My wife died of a massive heart attack 3 weeks shy of our 4th anniversary,   
   and we had to have the dachshund put to sleep...he became diabetic,   
   resistant to the insulin, then went blind from cataracts and glaucoma.   
   But, he had a working nose, and a full set of teeth!!   
      
    AH@>           Reminds me of a neighbour of ours who died from a   
    AH@> particularly fast- growing variety of prostate cancer which then spread   
    AH@> elsewhere.  He was afraid he might have cancer, so he put off   
    AH@> consulting his doctor about it until there wasn't much anybody could do   
    AH@> to help.  His wife blamed the ER for not noticing he had bone cancer   
    AH@> when he broke a couple of ribs as a result of falling off a high shelf   
    AH@> at work.  I felt saddened that neither of them got the picture even   
    AH@> though they lived in close proximity to the home of the SURVIVOR   
    AH@> echo....  :-(   
      
     Now that I'm over 50, I have yearly cancer checks...prostate, testicular,   
   colon, esophageal...you name it. The thing is, I had to have these done at   
   least 13 months apart, or Medicare won't pay for it. The prep work may be   
   literally a pain in the butt (pun intended), but if nothing is found, it   
   makes it all worth it. Conversely, if something is found that's either    
   benign (pre-stage 1), or at stage 1...and removed...you have a 90% chance   
   of survival. It's shocking how those percentages plummet once it goes to   
   stage 2, and especially 3 and 4.    
      
    AH@>           Because of your IBS, however, you are monitored at regular   
    AH@> intervals for such things.  It seems to me that every cloud has a   
    AH@> silver lining....  ;-)   
      
     Cancer has run in my family...and I doubt any family has escaped the   
   sting of that scourge. I lost an uncle (my Dad's brother) to colon cancer...   
   my grandmother to lung cancer...and both my Dad and an aunt (his sister) to   
   pancreatic cancer.   
      
     On another note, I'm going in on Tuesday for a Doppler Ultrasound to    
   check for blood clots. Since I spend at least an hour a day working with    
   the BBS, playing games, and reading the message areas (as I'm doing now...   
   thank goodness for QWK mail!)...not to mention sometimes the flareup of IBS    
   tends for long sits on the toilet...that could develop blood clots. While    
   those in the legs are "working against gravity" to work up to the heart,    
   lungs, or brain...if one does, the outcome is usually fatal. :(    
      
     From what I've read on WebMD (excellent website, but not a substitute   
   for your physicians advice), there isn't any prep work for that Doppler   
   Ultrasound, per se. However, I will have to strip naked (which doesn't   
   bother me...the medical staff is there to save my butt, not kiss it)...   
   and they'll use that deal with a COLD gel to check for clots. If clots   
   are found, they'll likely put me on Cumadin (warfarin, the same    
   ingredient in rat poison), to thin it. While I have Naproxen Sodium   
   for pain, any aspirin acts as a blood thinner, so I try to avoid that.   
   The closest I get to aspirin, is the Walgreens Migrane Tablets (I take   
   a max of 2 a day, when I need it). My Mom takes an 81 milligram aspirin   
   tablet each day, advised by her doctor, and we saw them when I was helping   
   her with grocery shopping at Wal-Mart earlier this month.   
      
     Lastly, my Mom ordered this "portable exercise device"...with pedals,   
   and handlebars...to exercise both the feet and hands, while you are   
   seated. It's not an actual bicycle, but it does provide exercise for   
   both your arms and legs.   
      
   Daryl   
      
   ... Bad Restaurant: Hospital map on the back of the menu.   
   --- MultiMail/Win32 v0.49   
                                                                             
   --- Virtual Advanced Ver 2 for DOS    
    * Origin: The Thunderbolt BBS (1:19/33)   

[   << oldest   |   < older   |   list   |   newer >   |   newest >>   ]


(c) 1994,  bbs@darkrealms.ca