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|    SURVIVOR    |    Cancer/Leukemia/blood & immuune system/c    |    538 messages    |
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|    Message 210 of 538    |
|    Ardith Hinton to Mark Hofmann    |
|    Later this month.    |
|    03 Oct 12 23:56:09    |
      Hi, Mark! Awhile ago you wrote in a message to Ardith Hinton:              AH> One of the endearing things about Nora as a baby was       AH> that she'd quite happily adjust to the shape of the       AH> person holding her. And it didn't occur to me until       AH> we lent one of her classmates a pair of boots that       AH> I'd forgotten how to put boots on "normal" kids who       AH> don't know how to help me. :-)              MH> Our son is also very flexible. He can bend in ways       MH> that would make something in my body snap.                      Likewise WRT how Nora often bends her ankles, especially the one she       broke as the result of a fall when she was in her early teens. The orthopedic       surgeon told us it was actually rather fortunate that her ankle bent until the       knob collided with other bones on the same side because a broken ankle is much       easier to fix & heals much more quickly than soft tissue damage... [wry grin].                            MH> After doing more thinking about the situation, we have       MH> since decided to go back to our original surgeon (whom       MH> performed the operation on our son when he was 1 day old).              MH> About 3 weeks ago we had another contrast study and we       MH> will be discussing the surgery with him this Tuesday.                      IOW, you & your wife have agreed on taking this course of action. I       think it's important that parents work together in such situations. While she       may be chief breadwinner at present, her input is highly significant too. :-)                            MH> The good news is the area has gone down in size, but not       MH> enough. He is going to need a temporary "redirection" for       MH> around 6-8 months and then the final corrective surgery can       MH> be done and all will be well.              MH> We are all looking forward to that.. :)                      Yes. You've done your homework & you have confidence in the doctor.       If I understand the situation correctly you have time to be there for your son       as well because (by some people's standards) you are underemployed at present.       By my standards, the contribution you've been making as the father of this kid       is a pearl beyond price. AFAIC there's no more important work even though you       don't get paid in coin of the realm for doing it. If you truly believe you've       made the right decision, that goes a long way. And as a nurse commented about       another four-year-old in a book I read when Nora was about the same age... she       didn't understand why she was in hospital, but accepted it because her Mom was       with her. IMHO Bernie Siegel would approve. At any rate I certainly do. :-)               For those who tuned in years after Nora was diagnosed with leukemia,       and I hastily packed a hospital suitcase, and I grabbed the library book which       was on top of the pile on our window sill, and I finally got around to reading       it after memorizing everything you never wanted to know about leukemia because       oncology parents must pass a test on this stuff before their kid is discharged       ... Bernie Siegel is an oncologist who wondered why some people survive cancer       while others don't. When I read his book I realized I'd been doing exactly as       he said (athough others thought I was crazy) & decided to do more of it. That       was how this echo was born. Her Nibs is still alive & well, thankyou.... ;-)                                   --- timEd/386 1.10.y2k+        * Origin: Wits' End, Vancouver CANADA (1:153/716)    |
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