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|    SURVIVOR    |    Cancer/Leukemia/blood & immuune system/c    |    538 messages    |
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|    Message 205 of 538    |
|    Mark Hofmann to Ardith Hinton    |
|    Re: Later this month.    |
|    02 Sep 12 10:25:00    |
      AH> Relax the bowel?? I also have some doubt about this idea       AH> because       AH> the average kid with DS has no problem with relaxing various muscles. It       AH> came as a shock to me, as a mother, when I realized how stiff & tense       AH> other       AH> people's kids seem to be by comparison. One of the endearing things       AH> about       AH> Nora as a baby was that she'd quite happily adjust to the shape of the       AH> person holding her. And it didn't occur to me until we lent one of her       AH> classmates a pair of boots that I'd forgotten how to put boots on       AH> "normal"       AH> kids who don't know how to help me. :-)              Our son is also very flexible. He can bend in ways that would make something       in my body snap.               After doing more thinking about the situation, we have since decided to go       back to our original surgeon (whom performed the operation on our son when he       was 1 day old).              About 3 weeks ago we had another contrast study and we will be discussing the       surgery with him this Tuesday. The good news is the area has gone down in       size, but not enough. He is going to need a temporary "redirection" for       around 6-8 months and then the final corrective surgery can be done and all       will be well.              We are all looking forward to that.. :)              - Mark              --- WWIVToss v.1.50         * Origin: http://www.weather-station.org * Bel Air, MD -USA (1:261/1304.0)    |
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