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   SURVIVOR      Cancer/Leukemia/blood & immuune system/c      538 messages   

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   Message 205 of 538   
   Mark Hofmann to Ardith Hinton   
   Re: Later this month.   
   02 Sep 12 10:25:00   
   
   AH>           Relax the bowel??  I also have some doubt about this idea   
   AH> because   
   AH> the average kid with DS has no problem with relaxing various muscles.  It   
   AH> came as a shock to me, as a mother, when I realized how stiff & tense   
   AH> other   
   AH> people's kids seem to be by comparison.  One of the endearing things   
   AH> about   
   AH> Nora as a baby was that she'd quite happily adjust to the shape of the   
   AH> person holding her.  And it didn't occur to me until we lent one of her   
   AH> classmates a pair of boots that I'd forgotten how to put boots on   
   AH> "normal"   
   AH> kids who don't know how to help me.  :-)   
      
   Our son is also very flexible.  He can bend in ways that would make something   
   in my body snap.     
      
   After doing more thinking about the situation, we have since decided to go   
   back to our original surgeon (whom performed the operation on our son when he   
   was 1 day old).   
      
   About 3 weeks ago we had another contrast study and we will be discussing the   
   surgery with him this Tuesday.  The good news is the area has gone down in   
   size, but not enough.  He is going to need a temporary "redirection" for   
   around 6-8 months and then the final corrective surgery can be done and all   
   will be well.   
      
   We are all looking forward to that..  :)   
      
   - Mark   
      
   --- WWIVToss v.1.50    
    * Origin:  http://www.weather-station.org * Bel Air, MD -USA (1:261/1304.0)   

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