Just a sample of the Echomail archive
Cooperative anarchy at its finest, still active today. Darkrealms is the Zone 1 Hub.
|    SURVIVOR    |    Cancer/Leukemia/blood & immuune system/c    |    538 messages    |
[   << oldest   |   < older   |   list   |   newer >   |   newest >>   ]
|    Message 199 of 538    |
|    Ardith Hinton to Mark Hofmann    |
|    Later this month.    |
|    03 Jul 12 23:46:38    |
      Hi, Mark! Recently you wrote in a message to Ardith Hinton:              MH> I have learned more about bowels than I ever thought       MH> I would ever need to know.                      As I did about pediatric leukemia 'way back when.... ;-)                            [re my mother, after her surgery]       AH> *where she was acquainted with various washrooms she could       AH> get to on short notice*.              MH> It seems to depend on what area of the bowel was removed.                      Makes sense, now that I think about it. I just hadn't devoted       much thought to the subject because my mother never mentioned it once she'd       asked me to look up this strange condition the doctor told her she had. She'd       carefully written down the name... and she knew we had some medical reference       books. But for her that was an unusual degree of openness. I had to put the       rest together from my own personal observations after some time had gone       by.... :-)                            MH> The descending colon is mainly for "storage". It doesn't       MH> have much other function. Basically, you would have less       MH> storage and would have to go more often, but the body       MH> normally adjusts to this from what I understand.                      Ah. My mother had Crohn's disease, which can occur anywhere in       the GI tract but is most often found higher up. That might explain a lot.        She was also getting on in years by then. In my experience kids... including       kids with DS... tend to be more adaptable than the vast majority of grownups I       know. :-)                            MH> It is going to be stressful.                      Yes, I'm sure....                            MH> I have checked with every pediatric surgeon in the state       MH> and a few surrounding states. We have selected the most       MH> recommended one around with lots of experience, so I just       MH> have to trust his ability and knowledge.                      Uh-huh. Sounds to me as if you're doing all the right things. :-)                            MH> Our main challenge right now is getting in touch with him       MH> since he is very busy. It will certainly be incredible for       MH> our son not to have to deal with the "work-around" that we       MH> have in place right now to keep him well.                      Yes, and probably for his parents too. :-)                            MH> The plan right now is for the operation to take place this       MH> summer.                      We may go camping briefly now & then, and even at the best of       times I may be slow to answer... but please be assured we haven't forgotten       you. :-)                                   --- timEd/386 1.10.y2k+        * Origin: Wits' End, Vancouver CANADA (1:153/716)    |
[   << oldest   |   < older   |   list   |   newer >   |   newest >>   ]
(c) 1994, bbs@darkrealms.ca