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|    SURVIVOR    |    Cancer/Leukemia/blood & immuune system/c    |    538 messages    |
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|    Message 187 of 538    |
|    Ardith Hinton to Mark Hofmann    |
|    Later this month.    |
|    25 Apr 12 23:56:59    |
      Hi, Mark! Recently you wrote in a message to Ardith Hinton:              MH> With Hirschsprung's, the only way you can have a BM       MH> is either when the pressure builds up enough behind       MH> the transition zone or enemas.                      Ah... I thought that might be the case.                            MH> We have had to use a combination of Miralax and enemas       MH> to keep things under control.                      You do what you have to do, eh? Sounds familiar... [wry grin].                            AH> A month or so has already gone by, and I'm 'way behind       AH> in answering my mail. But please be assured we haven't       AH> forgotten you.... :-)              MH> Me too. :) Thanks, I appreciate it.                      Glad to hear that! In SURVIVOR we answer when we can & whatever you       have to say won't be dismissed as "old news" within the next few days.... ;-)                            MH> There is no update as of yet. We are still doing our more       MH> agressive approach to keep him managed and will then probably       MH> get another xray to see where we stand.                      So the "transition zone" has in effect been stretched by the lack of       response lower down, and now you're trying to get it to shrink back again with       more aggressive use of laxatives & enemas?? I'd say it's worth a try.... :-)                            MH> Hopefully, it will have gone down in size enough to perform       MH> the operation with the least amount of bowel removed (only       MH> the section with no nerve cells)                      I'm not a great fan of surgery either. I reckon it may be necessary       at times when there is no other long-term solution... and that does seem to be       how things are re the portion with no nerve cells. But I understand why you'd       want to keep any surgical intervention to a minimum in this case. As a parent       I've balked on occasion at somebody's idea of a dramatic rescue mission... and       eventually forced them to admit they could probably use a kinder & gentler way       of achieving the same goal. If laxatives & enemas don't work, you'll know you       tried. But once a bit of anatomy has been removed you can't put it back. :-)                                   --- timEd/386 1.10.y2k+        * Origin: Wits' End, Vancouver CANADA (1:153/716)    |
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