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   SURVIVOR      Cancer/Leukemia/blood & immuune system/c      538 messages   

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   Message 187 of 538   
   Ardith Hinton to Mark Hofmann   
   Later this month.   
   25 Apr 12 23:56:59   
   
   Hi, Mark!  Recently you wrote in a message to Ardith Hinton:   
      
   MH>  With Hirschsprung's, the only way you can have a BM   
   MH>  is either when the pressure builds up enough behind   
   MH>  the transition zone or enemas.   
      
      
             Ah... I thought that might be the case.   
      
      
      
   MH>  We have had to use a combination of Miralax and enemas   
   MH>  to keep things under control.   
      
      
             You do what you have to do, eh?  Sounds familiar... [wry grin].   
      
      
      
   AH>  A month or so has already gone by, and I'm 'way behind   
   AH>  in answering my mail.  But please be assured we haven't   
   AH>  forgotten you....  :-)   
      
   MH>  Me too.  :)  Thanks, I appreciate it.   
      
      
             Glad to hear that!  In SURVIVOR we answer when we can & whatever you   
   have to say won't be dismissed as "old news" within the next few days....  ;-)   
      
      
      
   MH>  There is no update as of yet.  We are still doing our more   
   MH>  agressive approach to keep him managed and will then probably   
   MH>  get another xray to see where we stand.   
      
      
             So the "transition zone" has in effect been stretched by the lack of   
   response lower down, and now you're trying to get it to shrink back again with   
   more aggressive use of laxatives & enemas??  I'd say it's worth a try....  :-)   
      
      
      
   MH>  Hopefully, it will have gone down in size enough to perform   
   MH>  the operation with the least amount of bowel removed (only   
   MH>  the section with no nerve cells)   
      
      
             I'm not a great fan of surgery either.  I reckon it may be necessary   
   at times when there is no other long-term solution... and that does seem to be   
   how things are re the portion with no nerve cells.  But I understand why you'd   
   want to keep any surgical intervention to a minimum in this case.  As a parent   
   I've balked on occasion at somebody's idea of a dramatic rescue mission... and   
   eventually forced them to admit they could probably use a kinder & gentler way   
   of achieving the same goal.  If laxatives & enemas don't work, you'll know you   
   tried.  But once a bit of anatomy has been removed you can't put it back.  :-)   
      
      
      
      
   --- timEd/386 1.10.y2k+   
    * Origin: Wits' End, Vancouver CANADA (1:153/716)   

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