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|    SURVIVOR    |    Cancer/Leukemia/blood & immuune system/c    |    538 messages    |
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|    Message 163 of 538    |
|    Ardith Hinton to Mark Hofmann    |
|    New to the echo... 1B.    |
|    14 Nov 11 21:46:14    |
      Hi, Mark! Recently you wrote in a message to Ardith Hinton:              MH> Actually, he would use sit in an open indian style and       MH> use his legs to skoot. It was a combination of a hop and       MH> skoot using legs (sideways on the ground) and hopping on       MH> his butt.                      Nora still enjoys sitting cross-legged... in her own inimitable       way, of course! Years ago it drove her physios crazy because they were afraid       she'd dislocate her hip. She hasn't yet. I'm also told it is a very stable       position which helps enable kids to avoid toppling over & maintain good       posture.... :-)                            MH> I had read that the crease tends to be a straight line on       MH> kids with DS, but that isn't always the case. There are       MH> cases of people without DS that have the same straight line       MH> crease, but they are rare.                      Yes, there's an example of a characteristic associated with DS       which also occurs... perhaps less often... among the general population.        Another has to do with the "epicanthic fold" at the corner of the eye adjacent       to the nose. For Orientals this is normal... for Caucasians it's normal in       babies & in about 10% of other folks who do not have DS. Before chromosome       tests were available, Dr. Langdon Down identified numerous characteristics       which are still used today in making a tentative diagnosis. I've seen enough       real-life examples to hazard a guess in many cases. It's important to       realize, however, that what's unusual is a collection of features which might       otherwise be relatively rare & that not everybody with DS has exactly the same       features. The dummified explanations of DS don't acknowledge that there's       more than one variety either. By comparison, if I see an article about       leukemia in which the author says there are two kinds I may not learn much       from him or her because I can think of five at least. ;-)                            MH> Getting the proper movement in the tounge seems to be the       MH> trick with our son. When I work on words with him, I say       MH> them slow and in sections. Making a sound and then turning       MH> it into a word. Like "TTTTTTTTTTTTTRRRRRRRRR uck".                      As a former Learning Assistance teacher, I approve! Exaggeration       is a great teaching tool, IMHO, along with doing these things in slow motion.        :-)                            MH> Once he masters a word, he likes saying it over and over.                      IOW, he seems to have a good handle on his own learning style.        Nora was... and still is... like that too. When she first discovered the       concept of parallel lines she drew grass in every one of the eight colours in       her felt pen box a day at a time, and then she went on to experimenting with       something else. Right now she's studying Alexander the Great with help from       Yours Truly because she understands far more than she can read by herself &       she's quite peeved that history was neglected in her Life Skills class. I'm       enjoying the experience of reading this stuff with her because I did the same       at more or less the same age (despite my own inadequacy WRT politics or       memorizing names & dates of battles) & because I came under fire from a       certain high school librarian who criticized me for reading the Iliad, the       Odyssey, and the Aeneid one after the other. Her stance was that my choice of       material lacked variety. My stance... if kids had been allowed to express       personal opinions in those days... would have been that I'd go on to reading       other things when I'd finished with that particular topic. One historian says       Alexander used the same stallion until the day he died while another says he       retired the same horse a few years earlier. If Nora & I hadn't read different       accounts we probably wouldn't know that. I like her style. :-)                            MH> He will say truck and bus all the time when he sees one       MH> while we are driving around.                      Ah... I gather he's interested in wheeled objects which enable       folks to get from Point A to Point B. When Nora was about the same your son       is now & we were on our way to the local shopping area with her in the       stroller (because she couldn't walk that far yet) she pointed out & correctly       named a bus, a car, and a bicycle. I was thinking to myself "Wow, she's       categorizing!" I once had a student in grade five who couldn't do that.        Further on, at a street where we had to wait for traffic lights, she pointed       out & correctly named a wheelchair. The occupant of the wheelchair gave me a       disapproving look... I reckon her mind was stuck in the 1950's, when kids were       taught it's rude to notice such things. By then Nora & I had spent so much       time in hospital that to us a wheelchair was just one of many similar       conveyances. If the woman had said anything to me I'd have pointed out that       we were using a stroller for the very same reason she was using a wheelchair.        IMHO this scenario epitomizes the inadequacy of "political correctness". I       tend to forget about the chair when I focus on the human being sitting in it,       and we've found younger wheelchair users invariably co-operative when we       remark "I see you're using a Snazzy 350. How's the turning circle...?"                                   --- timEd/386 1.10.y2k+        * Origin: Wits' End, Vancouver CANADA (1:153/716)    |
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