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|    SURVIVOR    |    Cancer/Leukemia/blood & immuune system/c    |    538 messages    |
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|    Message 151 of 538    |
|    Ardith Hinton to Mark Hofmann    |
|    New to the echo... 1B.    |
|    12 Oct 11 23:26:31    |
      Hi again, Mark! This is a continuation of my previous reply to you:              MH> Our son used to "skoot" on his butt very fast on       MH> the floor.                      ... using his arms to push himself around?                            MH> He never crawled. He went from skooting to walking       MH> and then to running. :)                      Nora went from creeping... i.e. pushing herself around with extended       arms while lying on her tummy... to standing & walking with the aid of a solid       object such as the coffee table. Kids with DS who can bend their knees & keep       them together may have accomplished a phenomenal task in developing the muscle       strength necessary to counteract the opposing muscles. Once they've done that       ... why waste time crawling when you can walk?? And they're off... [chuckle].                            MH> There is one very unique thing with our son.       MH> I have heard most children with DS have a large       MH> straight line on the palm of their hands.                      The so-called "simian crease"? IMHO this is a term originating from       an era in which people with DS were generally regarded as less than human. My       understanding is that a syndrome is a cluster of features, any or all of which       may be found in the population at large. Some people with DS have the "simian       crease"... Nora doesn't. I'm not prepared to say how many others exhibit this       feature because I have little opportunity to study their palms in detail. :-)                            MH> Our son has a straight line on one of his hands,       MH> but not the other. I'm not sure why or what that       MH> could mean, if anything.                      It might mean something to a palmist... and from that standpoint I'd       be interested in knowing which is which. Otherwise I wouldn't attach a lot of       importance to it because other people's bodies aren't symmetrical either. :-)                            MH> He understand most everything. His big problem is       MH> trying to express himself in words. He is getting       MH> it though, just taking a bit.                      If he has difficulty getting his tongue around the words because his       tongue doesn't quite fit his mouth, that's not unusual for kids with DS. As I       remarked about one of Nora's ward mates who couldn't speak because she'd had a       stroke... she understands what we're saying, but she can't talk. I knew I was       on the right track when she grinned from ear to ear & nodded enthusiastically.               Even among "typical" children & adults, generating speech requires a       more complex skill set than understanding speech. Kids who are ready to learn       how to express themselves in words may be able to use gestures & sign language       to cover the transitional period during which they still have difficulty using       oral speech. Nora went to a preschool group in which both were used together.       The group included kids who had developmental delays for any number of reasons       ... not just kids with DS... and contrary to some people's fears, we found she       didn't become overly dependent on sign language. While it's a useful skill to       have in one's repertoire, the majority of others don't understand it. The net       result, in Nora's case, was that it faded as her oral speech improved.... :-)                            MH> We have a total of 6 kids. Only one between the two       MH> of us (being our son). Everyone is unique and special       MH> in their own way..                      Exactly. Years ago... when the state of the art was that there were       three million possible combinations of genes... a distraught mother approached       me to ask why her son was so different from her daughters. I told her I found       it rather amazing that her daughters were so alike. Nowadays three million is       considered a gross underestimate, but I think the same principle applies. ;-)                                   --- timEd/386 1.10.y2k+        * Origin: Wits' End, Vancouver CANADA (1:153/716)    |
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