Mark Hofmann to All on 09-03-11 22:12 re: New to the echo.   
      
    MH> Just wanted to say hello to everyone in here, as I have   
    MH> just picked up this echo from my hub.  I had seen it   
    MH> before, but was not totally clear on the discussion until   
    MH> now.   
      
      
      
    MH> As some already know, my youngest son (4 years old now) has Down   
    MH> Syndrome. He is only mildly effected from it, causing some delays.   
    MH> It took him alittle longer to walk (now he runs), drink   
    MH> from a cup, etc.  He is doing all those things now, but his   
    MH> speech is still developing.  He knows how to say many words   
    MH> and completely understands just about everything you say to   
    MH> him.  He is also very godo at sports and has a good   
    MH> pitching arm.  We were outside today playing catch.   
      
   It sounds like you have a firm grasp on the blessings.    
      
    MH> He has been a real blessing and a wonderful child.  One thing we still   
    MH> need to get through is he needs an operation for Hirschsprung's   
    MH> Disease.  It is where a section (at the end) of the bowel   
    MH> lacks nerve cells and causes bad constipation.  He is due   
    MH> for the operation later this year.  Otherwise, he is   
    MH> completely healthy.  He did have an operation when he was   
    MH> first born (duodenal atesia) which is where the connection   
    MH> between the stomach and small instestine is blocked.   
      
   Thank you for giving us the thumbnail of these conditions. For those new to   
   this echo, maybe it's time I reciprocate.   
      
   My oncology surgeon nicked a nerve that somehow affects my sciatic nerve   
   Twenty-years ago. Sitting and walking is a challenge. I was diagnosed with a   
   fibroid neuroma just a few years ago, (FINALLY) but we are not sure if it is on   
   a muscle nerve that impinges on my sciatic. Physical maladies, are only the   
   *beginning* of my issues.   
      
    MH> He has a clean bill of health (including heart tests)   
    MH> otherwise.  Once we get through this operation, he should   
    MH> be in much better shape.  No long term issues.   
      
    MH> Was wondering if anyone is familiar with any of those operations?   
      
   We are more so now.    
      
    MH> Looking forward to discussion with everyone.   
      
   Likewise... Often assistance can come from unexpected sources and in obtuse   
   directions.   
      
      
   ... James   
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