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|    SURVIVOR    |    Cancer/Leukemia/blood & immuune system/c    |    538 messages    |
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|    Message 137 of 538    |
|    Mark Hofmann to Ardith Hinton    |
|    Re: New to the echo... 1.    |
|    13 Sep 11 21:56:14    |
      AH> Hi & welcome, Mark! Recently you wrote in a message to All:              Thanks!! Happy to be here..              AH> days after Nora's birth, when the pediatrician's diagnosis of DS had just       AH> been confirmed, the gynecology resident accosted me outside our room to       AH> ask... in essence... why I hadn't been weeping & wailing & gnashing my       AH> teeth. I told him about Judy, a former student of mine, and added that       AH> I'd       AH> be quite content to have a daughter like her. :-))              We had a similar situation. After they first told us that our son had DS,       they sent in a "counsler" to talk to us and make sure we were "ok". I       couldn't believe they did such a thing and sent the person out of the room.        They treat it like some horrible disease - which is far from the truth. We       are happy with whatever we were given.              AH> Uh-huh. IIRC, kids with Down's syndrome walk independently at       AH> 3       AH> yrs. of age on average... just as Nora did. One of the common       AH> characteristics of DS is that various muscle groups tend to be stronger       AH> than              Our son used to "skoot" on his butt very fast on the floor. He never crawled.       He went from skooting to walking and then to running. :)        There is one very unique thing with our son. I have heard most children with       DS have a large straight line on the palm of their hands.               Our son has a straight line on one of his hands, but not the other. I'm not       sure why or what that could mean, if anything.              AH> IOW he's a typical boy in many ways although he may have       AH> reached       AH> some milestones later than others of his age generally do. One of the              Exactly. It isn't that they "can't" do something. It can be delayed and can       take longer to reach the same milestones.              AH> I figure he probably understands more than some other adults       AH> realize. When Nora was around the same age I realized I had to simplify       AH> my       AH> delivery if I expected other kids (of supposedly normal or higher       AH> intelligence) to understand what I was attempting to say. I agree that       AH> both       AH> speech therapy & sign language may be very helpful for kids who can't get       AH> their tongues around the words. :-)              He understand most everything. His big problem is trying to express himself       in words. He is getting it though, just taking a bit.              AH> Yes. A mother of two once told me she often wished her       AH> "typical"       AH> son was more like the one with DS, and a mother of four told me the one       AH> with       AH> DS was the light of her life. I don't have other kids of my own to       AH> compare       AH> with, just a whole bunch of students of various ages. But otherwise I       AH> can       AH> relate.... :-)              We have a total of 6 kids. Only one between the two of us (being our son).       Everyone is unique and special in their own way..              - Mark              --- WWIVToss v.1.50         * Origin: http://www.weather-station.org * Bel Air, MD -USA (1:261/1304.0)    |
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