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   SURVIVOR      Cancer/Leukemia/blood & immuune system/c      538 messages   

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   Message 128 of 538   
   Mark Hofmann to Dallas Hinton   
   Re: New to the echo.   
   05 Sep 11 14:05:38   
   
   DH> Greetings!!  Hmm....is there something we should change in the   
   DH> description, perhaps?   
      
   I should have looked for the description early on.  I thought it was only for   
   people that survived some type of adversity (based on the echo tag).  Once I   
   found the description, it make more sense to me.     
      
   DH> Excellent!! Our daughter (25) also has Down Syndrome. Not only is she   
   DH> doing   
   DH> well, she's just been awarded the George Klukas Achievement Award for   
   DH> personal growth in a person with Down Syndrome (via the Down Syndrome   
   DH> Research Foundation: www.dsrf.org). We're very proud of her!   
      
   That is great!     
      
   DH> They're new to me, but like many parents of kids with DS, we've had our   
   DH> share of surgeries and panics! Our daughter had leukemia at age 3, a few   
   DH> other procedures, and then a major stroke at age 16. She's now Left side   
   DH> hemiplegic and uses a wheelchair, but still smiling! :-)   
      
   Thats the important thing.. :)   
      
   We have been working around our son's bowel issue since he was born. It is   
   difficult to get a procedure done when there is no "clear and present danger   
   at that moment", but this does need to be fixed.  The risk of not doing it   
   long term is worse.   
      
   Still working with him to increase his vocabulary.  That will keep him from   
   getting as frustrated at times when he acts out due to people not   
   understanding what he wants.  He knows more sign language than I do.  :)   
      
   - Mark   
      
   --- WWIVToss v.1.50    
    * Origin:  http://www.weather-station.org * Bel Air, MD -USA (1:261/1304.0)   

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